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Diagnosis: Aortic Regurgitation, Aortic Stenosis, Bicuspid Aortic Valve

Member Since: July 20, 2021

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Sara Latina posted an update

2 years ago (May 18, 2023)

I feel like Iâ€™m on an other roller coaster of a journey. After finally speaking to my cardiologist he told me in addition to the heart failure the tests also show a lung obstruction. My pulmonologist didnâ€™t mention that but he did start me in trelligy and ordered another pulmonary... Read more.

😂 Grace Mason reacted to this

Rose Madura

Oh Sara, you're really having a difficult time. My advice is to keep on being your own advocate. You might consider getting another opinion if it were me. It's frustrating when things keep going south. Look up and stay strong. Godspeed.

David Carriker

Does your sternum hurt in any specific area, for example the top of the incision, the bottom of the incision or the middle only? Does it hurt all the time or when you move a certain way? I agree about getting a second opinion. Stay strong!❤️

Marie Myers

I am sorry that you are having these issues. Have you consulted with a pain specialist to see if there is any type of nerve block to try with the Sternal pain? I donâ€™t know if that is possible, but you could ask about it.

Susan Lynn

Sara - I'm so sorry you're going through this. I agree with Rose, it's time for another opinion. A fresh perspective might be helpful in resolving your issues. Keep the faith - the night is always darkest before the dawn. Please keep us posted. ❤️🙏

Andy Teel

Sara, donâ€™t give up. Medicine is science and science is unfortunately not exact and every body is physiologically different. There are so many brilliant doctors out there maybe itâ€™s time to start making some calls.

Iona Macintosh

Sorry youâ€™re having a tough time ðŸ¥² sending love & strength x

Sara Latina

I think you are all right and I am going to start looking for a second opinion.

Sara Latina posted an update

3 years ago (May 8, 2023)

Finally got a diagnosis for my continued issues - Diastolic Heart Failure. I'm praying its not as scary as it sounds. My pulmonologist told me today and now I have to wait to talk to cardiologist to answer my hundreds of questions I have.

🥰 😂 Pamela Gregory, Kimberly Eisenhut and reacted to this

Grace Mason

🙏prayers you get some answers

Klara ÄœiäIä‡

Dear Sara, most of us with valve problems have some degree of diastolic dysfunction... It usually isn't as bad as it sounds. It depends which stage of diastolic HF are you in... I hope you get clear anwsers from your cardiologist that will calm you down. Keep us posted and... Read more.

Sara Latina posted an update

3 years ago (March 24, 2023)

Yesterday marked 18 months since my Ross procedure. I'm alive and working and traveling again - all of which is great. The issue is I still don't feel good. The fatigue, exhaustion, shortness of breath is still a big problem for me. My sternum still hurts when I cough, when... Read more.

🥰 Andrew Dial and Laurie Johnson reacted to this

Jeanette Davidson

Sorry to hear that. Hope you get some answers and solutions at your appointment!â¤ï¸

Laurie Johnson

I hope you get some answers, Good Luck Sara!

Ana Brusso

Hi Sara, itâ€™s good to hear from you. Iâ€™m glad you continue to live your life in spite of your after surgery symptoms. Hoping you get answers and remedies for them. I will continue to keep you in my prayers. God bless you

Grace Mason

Sara, I hope the specialist has some answers for you and your healing continues. Sending prayers🙏