Marcia's Posts

Update. I'm now 8 weeks out from my mitral valve re-repair, which went well - I had really wanted a re-repair as opposed to a replacement. However..... my heart rate after surgery was too slow, so they needed to put in a pacemaker. At that point I was 8 days in the ICU. Unrelated to my heart, I have an inherited rare gene that predisposes me to blood clots, and by the time the pacemaker was put in I was off my anticoagulants too long and had a massive pulmonary embolism. Thankfully I was still in the hospital, and they were able to revive me and performed a thrombectomy. I was inpatient for a total of 2-1/2 weeks. Overall I think CC was amazing and I'm thankful for all they did for me.

Hi Marcia, thanks for the update - I'm on deck for September 10th w/Dr. Gillinov (Mitral Repair). You had quite the trial after surgery, so sorry you had to go through that and the extended hospital stay. You've earned every bit of that re-repair! Wishing you a smooth - and less eventful - recovery.

Hey - There have been a couple of failed mitrals here and those folks may respond. Was this a chord failure from last year at Northwestern? Just for your info, repeat patients often go to Mt Sinai (Adams) or Cleveland Clinic. It should not fail that soon, so I would switch teams ASAP. (Regardless of whether you switch to artificial repair or do a re-do)... Best of luck.

I have a congenital defect. I had holes patched and the mitral valve repaired in 1980. In Dec 2023 I had the mitral valve re-repaired at Michigan Cardiovascular in Ann Arbor. They have 3 mitral valve surgeons there and I know they do re-repairs instead of replacements when possible. My repair was successful and the valve has zero regurgitation post-op. You should consider consulting with several surgeons from various heart specialty centers to see if a redo surgery might be possible. Good luck to you.

Yes this past November I had a re- repair of my mitral valve. It was first repaired 2 years ago. No one in the Colorado area does re-repairs so they recommended a valve replacement. At a relatively young age, 67 at the time, I knew I'd be facing further surgeries when the biological valve wore out and didn't like that plan. I found one of the absolute "gurus" of mitral re-repairs on this website: Dr. David Adams of Mount Sinai Hospital in NYC. I am almost 6 months post op with a re-repaired mitral and newly repaired tricuspid and I am feeling great and back to all activities! Marcia, I am happy to chat further on or off this thread

I had mitral valve repair almost 2 yrs. ago at a local university hospital. My aortic root and ascending aorta aneurysm were not repaired at the time. Ended up getting 4 opinions total for my recent surgery which was done at Cleveland Clinic. CC does some of the most redo OHSs in the country. I am over 3 mos from Davide procedure surgery (aortic valve sparing aortic root/ascending aorta replacement) and doing well. Highly recommend them if it is an option for you.