Home > Community > Patient News Feed > Lila Robinson

Lila's Posts

Diagnosis: Aortic Regurgitation

Member Since: March 7, 2015

Send Lila a Note

My Posts

Lila Robinson posted an update

6 years ago (September 13, 2019)

Wow, well so much for my March 8, 2018 promise to write more! I have really struggled with the emotional side of this more than I ever thought. The feelings of my vulnerability have played havoc with my personal self-care. I am in probably the worse physical shape of my... Read more.

Gail Himmelsbach

I applaud your honesty about feeling vulnerable. I am not being humorous, but sincere when I say that I try not to think about longevity, importance of my health to my children-having lost their father as teenagers- my youngest was age 10-just thoughts that try to push into my mind... Read more.

Susan Lynn

Lila - Don't be so hard on yourself. Healing takes time and comes in many forms. Take your recovery in steps and create small challenges to keep yourself engaged. You'll get to where you want to go once you put your mind to it. All the best! â¤

Lila Robinson posted an update

8 years ago (March 8, 2018)

I seem to have a lot on my mind these days! It's been over a year and a half since I posted on here. I've decided I should post a bit more because maybe someone will want/need to hear some of my thoughts and experiences! My 2 adult sons were... Read more.

👍 Someone, Shannon Gray and reacted to this

Marie Myers

Great post! Always good to hear the thoughts of "veteran" heart patients!

Anna Jones

I would love to hear what you have to say as I will be going through it alone too.

Michael Cline

Lilia, Your post is making me think more about the emotional side of the AVR journey. I still have until May 14th before I see my cardiologist again to get the process started. I check out this site everyday to read how people cope. You are correct that the physical... Read more.

Rita Savelis

I love to hear from patients from the year 2015! I hear you Lila! OHS is not a "piece of cake", whether you have a loving spouse around or not. It's hard, and it can take time to process it all. Writing is good, and sharing your honest account of... Read more.

Civita Fahey

Wonderful post Lila. I posted something about the emotional part of OHS a few weeks ago. .no one speaks of it and surgeons just tell you physically you will be fine afterwards. Having people that understand what you have gone through even if its just in writing help so much..... Read more.

Barbara Wood

Great post. I'm looking forward to the next installment:). Best wishes to you Lila...

Lila Robinson posted an update

10 years ago (July 2, 2015)

7th Cardiac Rehab session was yesterday; they play music of all different sorts each day and just interact so nicely with those of us in the class. I was doing arm pulleys and realized I was singing out loud to the songs; I don't think the guys in the class... Read more.

👍 Nancy D and Jeanette Davidson reacted to this

Nancy D

I too was the only woman in my sessions of rehab, aside from the nurse that was there. We had some interesting conversations about every topic that I am not sure would have happened if it was just the guys. Good for you for singing out loud!! Spread your joy... Read more.