James's Posts

Diagnosis: Mitral Regurgitation

Member Since: January 7, 2017

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James Roberts posted an update
1 year ago (January 19, 2025)
Had a meeting with my surgeon last week after a TOE had revealed that the repair to my mitral valve had failed. I'm unable to do much exercise as I'm experiencing quite severe symptoms once again. The surgeon said that he would recommend a replacement this time as there was... Read more.
Why did your mitral valve repair fail? There can be many reasons including that you had a heart chamber was very much enlarged. After the first procedure, it could have shrank and now the cords they used are too long. In this case, another repair might be a better option... Read more.
Hi James, I am sorry you have to go through another surgery. I hope you will have the very best treatment and advice. My mitral valve replacement was done by Ravi De Silva at Papworth 11 weeks ago. Wishing you all the best.
Thanks. I have Mr. Moorjani. I was told it failed possibly because once you strengthen one part of the leaflets, it puts pressure on the other parts for some people. My main objective is to never have OHS again so that's why I don't want to take the risk with... Read more.
There are people on this site who have had mechanical valves and coped well after getting used to what is entailed. I hope you have the very best experience. My valve is bioprosthetic but I am older than you. I don't think I would want another OHS either but some... Read more.
I had my mitral valve replaced 6 months at age 59 and with the mechanical because I also did not want another OHS. I have had no issues . The valve is a little noisy but you do get use to it and a white noise machine at night is... Read more.
James, I was told my mitral valve repair should last many years, but there will be a time where they will need to go through my groin (TAVR for a damaged valve without opening chest cavity. I was told it’s years later when things begin to deteriorate. I understand. I’m... Read more.
James Roberts posted an update
1 year ago (November 25, 2024)
7 years ago I had my mitral valve repaired hoping it would be for life but unfortunately I have found that it has failed. My cardiologist has said that it is almost certain I will need a replacement this time and now I face that age old question - bioprosthetic... Read more.
James, I am 56 and just had aortic valve replacement 3weeks ago. I had similar thoughts however opt to take life 10-15 years at a time. They can do a second TVAR with bioprosthetic valve.also valve my last longer. Anyway my take was to live now and worry later. Hope... Read more.
Hi James--I just had a redo of Mitral replacement and my second surgery was at Mt Sinai in New York--Dr Adams. Great place and awesome team. I was scared they would tell me mechanical was better because I detest warfarin, but they told me they rarely do mechanical valves nowadays... Read more.
I would go bio. If you choose warfarin go on it now and test it out to see if you can handle it...I regret getting a mechanical valve and and am suffering. I am 56...May have to get a bio valve now. 6 months out and full of side effects... Read more.
Sorry to hear this. In what way are you suffering on warfarin? I was on it for a couple of months after my first surgery.
James, at age 59, I got a tissue valve. It's a real tough decision and one only you can make. My advice is to do your due diligence and interview more than one cardiologist or surgeon (second opinion). Ask lots of questions. But remember... whatever choice you make, it's the... Read more.
I had a mechanical mitral valave replaced in July with a mechanical and I was 59. Went with mechanical because I did not want another surgery when I was in my 70s. The warfarin makes me more careful and other than the mechanical being noisy when it is deathly quiet... Read more.
Thanks. When you say you had a mechanical valve replaced by a mechanical valve, does this mean your first one failed?
Hi James, I'm also 52 and had open heart aortic valve replacement in July this year in Edinburgh Royal. I had the same thoughts that your having now. I opted for a Edwards tissue valve, and its working brilliantly, no problems at all. Apparently these new valves might last 15... Read more.
Sorry, that was a typo . I did not have a mechanical replaced by a mechanical: I had severe regurgitation with flail of my original valve and got it replaced with a mechanical.
James Roberts posted an update
1 year ago (November 17, 2024)
I have to have a redo soon of my mitral valve repair which lasted 7 years. I'm intrigued to know why it failed after being told it was for life. I play a lot of badminton which is a very stop start game where my heart rate would often go... Read more.
So disheartening. Is etiology for the MV repair the same as the first time? In other words, did the first surgery’s repair not stay “intact” or did something more happen to valve? Good question re: HR. I have asked this question of several surgeons. Got mixed answers.
James - Wow! I'm approaching my 7 year mitral valve anniversary and I wouldn't be happy to be facing another surgery. Deena makes a good point - is the ring still intact? When the aortic valve heart warriors are getting additional surgeries, it's because the non-mechanical replacement valves only last... Read more.
The ring is still in tact but apparently a couple of the gore-tex chords have snapped.
Interesting. I would think those chords would not be under any huge stress as the just maneuver the leaflets. But they are mechanical items which can break.
James - I would look for a surgeon who can repair the chords via minimally-invasive or full-robotic entry. That should be a much shorter procedure and recovery than your first. Best of luck! ❤️
Thanks Susan, I was told that because of my age it would likely be open heart again as that tends to have the better outcomes but I will speak to my surgeon about what would be best.
I thought minimally invasive is a better choice the older one gets. -IF you go to one that is super high volume with excellent outcomes.
This is what i found online. 1. Do/did you have a lot of calcification? Material Degradation: Over time, artificial chords may undergo calcification or hyalinization, weakening their structure. 2. Surgical Technique: Intraoperative trauma to the suture material or improper anchoring can lead to mechanical failure. 3. Left Ventricular Remodeling: Changes... Read more.
I did have a thoracotomy the first time round. Thanks Deena that is interesting.
Did you ask your surgeon or cardiologist about the impact of high HR during exercise?
Yes, they both said I needn't worry and I could exercise as normal
Okay, so… did you have severe calcification on valve? If not, probably leaves the surgical knotting. - Though not an expert so have to be careful in casting any definitive judgment. I am only saying the latter, in case you are thinking of using the same surgeon.
Calcification has not been mentioned at all. The consultant who did the TOE said the new chords had snapped leaving the posterior valve leaflet flailing. I think I will probably choose a different surgeon for the redo.
James - There are some data to suggest failures in thoracotomy versus sterotomy (meta analyses of durability). Chord failure is common, sadly, when it happens - I'd definitely get a new surgeon on the job and have a rigorous discussion about replacement versus re-repair. You should also grill them about... Read more.
I’m sorry, I got confused. I wasn’t actually sure what a thoracotomy was. I actually had a sternotomy. I saw a cardiologist today and he said it’s likely I will need a replacement mitral valve rather than a re repair and it will be sternotomy again so I will need... Read more.
James, did your new potential surgeon provide a reason why a repair is not possible? I want to share with you that if I had gone with my local, fairly highly rated surgeon, he would have performed a MV replacement, rather than a repair. (Due to my severely calcified valve.)... Read more.
I've only seen the cardiologist who said the surgeon would likely do a replacement because mine had failed. I've yet to see the surgeon yet but I really don't want to risk having another repair if it's going to fail again. Have you had a re-repair?
Understand, a third repair would be really troublesome. No, I did not have a re-repair. I am at the 3.5 year post surgery mark so you never know, as you know too well. The surgical opinion from a highly ranked mitral valve surgeon will be helpful in your deciding the... Read more.

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