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Diagnosis: Mitral Regurgitation

Member Since: March 29, 2018

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Susan Robichau posted an update

2 years ago (June 17, 2023)

Itâ€™s been almost 5 years, but I am back again ðŸ˜©ðŸ˜© 3rd OHS for my mitral valve. They tried to repair it twice in 2018. First try lasted for 2 months, second try for 4 years. Getting it replaced this time with a different surgeon and hospital. D day is... Read more.

🥰 Pamela Gregory, Susan Lynn and reacted to this

Ana Brusso

Just read your story and Iâ€™m sorry you are going to have ohs again. The good thing is that you see the silver lining to have TAVR next time. Glad you changed hospital and surgeon. God bless you and keep us posted ðŸ™â¤ï¸

Rose Madura

Susan, I'm sorry to hear this. You must feel very frustrated. Good move on changing surgeon and hospital. Hopefully things will be better this time around. God bless you.🙏

Marie Myers

I can only imagine your frustration! Praying for a smooth surgery and lasting result this time.

Pamela Gregory

I am also happy you changed surgeons and hospitals. We will all pray that they get it right this time!🙏❤️

Klara ÄœiäIä‡

I am so sorry Susan, sounds like a nightmare. But you are strong and you can do it! We are here for the support, please keep us posted! ❤️

Donna Casaletto

Hi Susan, Iâ€™m also from Boston. So sorry to hear what youâ€™re going through but good for you being your own health advocate and doing what is best for you! Where are you having it done and whoâ€™s your surgeon? My OHS was on 2/23/23 Mass General with Dr. Langer... Read more.

Susan Robichau

Brigham with Dr Cunningham this time. Keeping my fingers crossed! He said that he does a lot of redos for other surgeons so hopefully is good. Thanks for the good wishes everyone

Donna Casaletto

Fingers and toes crossed for you â˜ºï¸

Annette Sterzel

I hope and pray your surgery went well this time around. Thoughts and prayers are being sent your way!

Robert Miller

Sorry to hear. I had OHS for mitral valve, 4 months later the bad news that I had to redo it. This time with a different doctor and hospital. Leaks again after another 4 months and my cardiologist ordered another visit in just a few months, i.e. not good signs.... Read more.

Susan Robichau posted a photo

7 years ago (June 23, 2018)

Murphy loved my first heart pillow, hope I get a second one on Monday!

👍 Someone, Rose Madura and reacted to this

Marie Myers

So adorable...

Catie B

Sooo cute and a great use! I put my head on mine when I need to do home PT exercises on a mat.

Susan Robichau posted an update

7 years ago (June 23, 2018)

The rate of death or stroke for an initial mitral valve repair is 1% and 2% I believe. Anyone know what it is for a redo repair 3 months after the first one??