Jonathan's Posts

Diagnosis: Aortic Regurgitation, Aortic Stenosis, Bicuspid Aortic Valve

Member Since: July 29, 2025

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Jonathan Thoms posted an update
3 months ago (January 21, 2026)
Just over one week left until I have my Ross Procedure. I've only ever had an ACL replacement and wisdom teeth removal before, and I'm about to have freaking open heart surgery! I've got so many "butterflies in my tummy", I feel like I might throw up my damn heart.... Read more.
It is definitely a stressful time. I did a lot of guided meditations.
I think the anticipation was worse than the actual procedure. I read the Bible, and walked 2-4 miles a day. Clears your mind, strengthens your heart for a faster recovery…and just know, you’ll be better off for it. Stay strong, good luck buddy.
I tried to imagine a timeline of surgery to recovery to back to normal. Doing so helped me understand the actual surgery was a step on the trail not the trail itself. I just focussed on what I could be doing any given day to put me in the best... Read more.
Plan something fun for 2-3 months post-op! A little bit of travel planning...research the hotels, the activities, the restaurants. Give your mind something to do besides worry about surgery (which is normal though...) We were having a family reunion and I looked for attractions with different activity levels just in... Read more.
Your emotions are very normal and don't fight it. A few hints from my side (I am not a religious person, nor a yoga/mediatator)... Get walks and gentle exercise. Organize your affairs ahead so you have a few days of solitude before surgery. Line up some fun television to enjoy... Read more.
Thank you all. I grea t’y appreciate your insights a nd advice. Super helpful!
I had forgotten I drove to see my dad for his birthday about 11 days before my surgery for a mini vacation. Then I went to see him again around Week 11, when I was well on my way to recovery. I was even able to play 9 holes of... Read more.
Jonathan Thoms posted an update
9 months ago (August 9, 2025)
Does anyone have a fairly comprehensive checklist of things to be take care of in the months before surgery? I know I need to determine someone I can appoint as a caregiver, start the FMLA process to take time off from work, update my will, arrange for cardiac rehab, and... Read more.
Your surgeon's scheduling person and your cardiologist's scheduling person should be able to advise. At a minimum, you'll need a heart cath, an echo, CT scan and blood work. Hope this helps.
I don't have a comprehensive checklist as I had about 1 week between diagnosis and surgery. Initially, they didn't even want my to leave the hospital. In any case, check out the learning center. Scroll all the way down past those advertisings. If you don't have a will/trust then that's... Read more.
In addition to the great advice you've already been given, I would add a showerchair, some loose sweat pants (we usually gain water weight after surgery), button front shirts (pullovers are challenging right after surgery), and maybe some slip on shoes (I found leaning forward to tie shoes to be... Read more.
for hospital, take a long 6-10 ft. phone charger and wall plug. and a notebook and pen-you think of questions to ask doc but you think you’ll remember them but you don’t! write them down as you think of them. at home, consider borrowing or renting a recliner chair. or... Read more.

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