Leslie's Posts

I went to the blood doc yesterday in hope of getting some advice about warfarin and my possible bad affects from it. He was an older guy. He told me he usually does not prescribe warfarin. I told him maybe not in the last 15 years...but you have been a doc for around 50 years)....As I have been to about 15 docs so far in regards of my nerve pain for the last 6 months. (since my surgery) 1) He said it could be the warfarin. I asked him if he thought the filler could be an issue with this generic. 2) He said he thinks acenocoumarol is better with less side effects. (I am in Europe - it is not approved in US) 3) He said I could go on heparin (Lovenox) for a few weeks and need only ONE shot a day?) Which I thought was strange -due to my weight. I weigh 160 pounds.... 4) He said if worse comes to worse I can take heparin for the rest of my life....Another interesting doctor visit....I am going off warfarin and into the hospital for a couple weeks to see what they can do for m

Going to the blood doc tomorrow and into the hospital on Monday to ween off warfarin and go on heparin for awhile to see if my nerve, muscle pain and spasms is related to warfarin. I am on a generic with lots of crappy fillers. Varnishes, heavy dyes and lacquers. I can special order the 5mg original Coumadin made in Italy under teofarma. I hope that could solve the problem. I have another choice acenocoumarol much shorter half life and not as stable as warfarin a potentially harder on the liver. I have high liver enzymes since my surgery. I will share my findings...I do not want anyone ever to go through this type of nerve, muscle pain as well as spasms. I has been a hellish 6 months since my surgery. If anyone has any thoughts are questions for the blood doc please feel free to share.

Looks like I am having major problems with the generic warfarin I am taking. Lots of sensory nerve issues. Leg pains, twitching. I met with my rehab doctor on a private basis and he said he can admit me bridge me to heparin to see if my symptoms improve. Italy still makes the original Coumadin. I can get the 5mg tablets here in a special pharmacy. In Europe we also have a couple other coumarins available. Acenocoumaral and Phenoprocoumon. I will meet with a high level blood doc on Friday and head to the hospital Monday morning. I will share my findings. But please if you decide mechanical make sure you can handle the warfarin first. I may have made the second biggest mistake of my life. My first helping a guy when I was 17 and he carjacked me and I fell out of the car and got hit by a second car going 50 miles per hour. Hodgekin's lymphoma 6 weeks later. Radiation destroyed my mitral valve. I probably could of held out a few more years instead of getting surgery and then would have gone bio as there are some really good developments down the road. I was pressured and locked up after some edema from afib and kind of forced to get this surgery...no second opinion allowed. I have a feeling I will be going under the knife again as I cannot metabolize warfarin well. I am basically homebound now in 24/7 pain...Chest is fine all the rest is not....