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Valarie's Posts

Diagnosis: Aortic Regurgitation, Aortic Stenosis

Member Since: September 25, 2024

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Valarie Sullivan posted an update

6 months ago (October 20, 2025)

So, Dr. M did echo last year and said my stenosis level was 37. Dr. J said surgery not necessary at this time. Dr. D earlier this year said stenosis level is 19â€¦.okâ€¦.. Today, went back to Dr. M (insurance is a wild beast) and she is going to do... Read more.

Rose Madura

Valarie, it sounds like you have interesting insurance but ask them if you can get another opinion from another doctor even if it is out of network. Sometimes the surgeon or doctor or hospital will push for something when it might not be the best option. You are going to... Read more.

Valarie Sullivan

❤️Thank you! I have been doing some research and it would seem that the policy for TAVR has indeed been changed to include lower risk patients! Wow! But! Bicuspid valves are still considered a high risk and must be evaluated carefully. Depends on the deformity and severity of calcification. Hopefully... Read more.

Valerie Allen

Yes, with my BAV at Cleveland Clinic, they wanted to do a full surgery to set me up for TAVR in the future. Disappointed but when they explained why, it made sense.

Valarie Sullivan posted an update

11 months ago (May 15, 2025)

Is it ok to have a little meltdown here? I need to vent. Called an ambulance last month because my heart rate was between 168-190 for over 20 minutes. It spontaneously cardioverted itself. Made the paramedics day. I had a mini stroke last month. Have had to change drs twice... Read more.

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Mary Willett

Oh Valerie, you sure do have a plate full. When you say 37....I think you mean the mean pressure on the aortic valve. Anything 40 or above is severe. You have so much going on. I hope you get answers and it relieves your anxiety. Its better to be evaluated... Read more.

Robert Miller

Well, I am not sure how to respond. You have a lot going on and I am sorry to hear about your stepdad passing away. As for you, do you keep having those high heart rates every so often? This is a concern because unless you do high impact exercises,... Read more.

Marie Myers

Vent all you want! You have a LOT going on, and I hope things ease up for you soon.

Pamela Gregory

Hang in there Valarie! We are all here for each other no matter what! Make sure you take care of yourself or else you can't help your Mom, Dad, kids, grandkids, and all the people on this site❤️

Grace Mason

â¤ï¸ oh dear you have a lot of stress going in your life. Take a few minutes(or longer) to do some deep breaths and try to release some of that stress every day. I hope you find the support you need here and close to home.

Ana Brusso

Vent all you want Valarie. Iâ€™m sorry for your stepfatherâ€™s passing. It seems that you have a good primary that can help you with some of your health issues. Remember that stress is not good for anyone. If you can find ways to release stress, that will be very helpful.... Read more.

Valarie Sullivan posted an update

1 year ago (January 10, 2025)

Update: still waiting on the report for the carotid ultrasound. I did ask my dr office to get a report and was assured I would receive it. Still waiting. I suppose no news is good news, huh? If there was something there they would have let me know. Right? I