Robert's Posts

Diagnosis: Bicuspid Aortic Valve, Aortic Aneurysm

Member Since: December 30, 2022

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Robert Stebbins posted an update
3 years ago (February 8, 2023)
Wondering when the chest pain went away for others? I had SAVR 8 weeks ago and recovery is going pretty well. One thing that isn’t improving of late is my chest pain (not my heart, but my sternum, collar bone, chest tissue, etc.). Maybe it never goes away? It is... Read more.
Hi Robert, I can only speak from an observation stand point since it was my husband who went through the surgery. It took him a few months to feel comfortable on his stomach. His surgery was 9/30/22 and I can even say that it’s just been recently he’s been sleeping... Read more.
I would say it was about 3-6 months before I didn't feel any pain. Most of my pain was in my shoulder/collar bone area, not sternum. Hang in there. It will get better. 👍
Hi Robert! I’m 7 weeks post SAVR and have been experiencing the same thing! My muscles along my stetnum are hurting more and my arm feels sore and stiff. And my incision feels tighter when I first get up from sitting until I’m up and moving around. I’m thinking as... Read more.
Hi Robert! I just talked to my Cardiologist about that same thing. I have been recovering 19 mos now. Still have pectoral pain, and rib pains. It took me many months before laying on my side. But it has mostly got better, but it comes and goes.My Cardiologist says there... Read more.
Is it "just" pain or do you hear noises coming from your chest? If you hear noises then you really have to get this checked out. Even if you don't hear noises I would let the surgeon know. (S)he might order a chest x-ray or CT (just make sure you... Read more.
I think each person is different. All the pain i had was between my ears... I only took Tylenol after leaving the hospital.
Robert, for me it took 2 years! meaning, with movement, it still hurt sometimes. Now after 8 years, I have no more pain. It takes time. I used an infrared healing lamp, and it helped tremendously, and felt good! good luck! 😊
Robert Stebbins posted an update
3 years ago (January 8, 2023)
I had AVR surgery 4 weeks ago and I feel lucky that recovery has generally gone well. I do notice quite a bit of collarbone pain that doesn’t seem to be going away. And, I could be imagining this, but it seems like my collarbone has shifted up following my... Read more.
Hi Robert. Yes, I did have some collar bone and shoulder pain. I don't know how long your surgery was but mine was 7 hours and they told me it was most likely from being in one position for that entire time. I took Tylenol for it. Eventually it went... Read more.
I noticed a lot of shoulder pain after surgery and was told it was from keeping it in a restrained awkward position for a long period of time during the procedure. I think it was raised but being asleep i have no recall. It was a few hours of course... Read more.
I am 6 weeks post op tomorrow and I was having a lot of neck/occipital pain that seemed to be coming from the collarbone. I started physical therapy for it a couple of weeks ago and when they were taking range of motion measurements they had me look up and... Read more.
Everything from your waist up, is likely effected in some way. I had 2 heart surgeries in 3 days, with my chest open for that time. Pretty much everything hurt at some point. I am 1.5 yrs out, and they tell me it could take 3 yrs to recover. I... Read more.
I had soulder pain, but not collarbone. Sometimes they put us in weird position during surgery. Try talking to your PCP to make some diagnostic to make sure everything is in it's place :) good luck
Robert Stebbins posted an update
3 years ago (December 30, 2022)
Did anyone else have serious mental health challenges in the hospital post-surgery? I did to the point of considering discharging myself. I’m glad it didn’t come to that but I definitely was not in my right mind much of the time. For me, the mental issues were far worse than... Read more.
I would say yes I did. After the first 3 days, once I could kinda sorta do my own thing, I wanted OUT! I had this really weird smell throughout my entire room/bathroom. It was wierd. Not sure if it was whatever was in my body that was coming out... Read more.
Both hospitals I was in offered mental and other services. The same applies for my insurance post-surgery. You might consider contacting them, though you seem to do better. I didn't have any such feelings for both my surgeries. I do recall having had similar feelings when in military service. Just... Read more.
Hey Robert! I definitely have had some mental issues this year, and in the hospital too. I was told it was the anesthetic that causes some of it, and, for me it could take a year to go away. When I first got out, I would just cry for no... Read more.
Wow, i had them pre surgery but not post. I was so happy to just wake up i never asked how the surgery went till the surgeon came by to visit. He said a ton of stuff that all went in one ear and out the other.
I was emotional during the post-op period. I could cry for no reason at all, which is not normally “me”. I think it is the body’s reaction to a huge surgery. It does take time for physical and emotional healing. Be patient with yourself; you have been through a lot!
Probably while in the ICU,a few nights,there were some visual hallucinations accompanied by auditory a little.I remember thinking,this is better than any Frank Zappa video.
Brady, I had colored dragons on the wall. The nurse asked if they were friendly. I said, so far! I was certain it was Chinese propaganda loaded into the pill they gave me to sleep. 😂
Brady - what a positive spin you had. Greg- that is one hilarious RN. Hope it helped you at that moment. Robert, the surgery and recovery is mind blowing and intense in so many ways. Give yourself a break during "re-entry". Your life was just saved and body "assaulted". You... Read more.
I hear you Robert. Intensive care was pretty intense. I was there for 5 days and thought my psyche would not survive. Morphine can contribute to making one feel crazy. Even when you know the visions are from morphine, they still seem real. And just the awful discomfort of post... Read more.
❤️ Thank you so much everyone. It is comforting to know I'm not alone in having some serious mental health after effects. I didn't see much written about it when doing my pre-surgery research so I felt kind of alone with it after surgery.
Robert, Sadly there is still a lot of stigma around mental health and talking about mental health. Alhough more than half of those who go through heart surgery will suffer from depression, even cardiologists don't bring it up. So one has to be vocal, vocal, vocal. As far as ICU... Read more.

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