Page's Posts

Diagnosis: Bicuspid Aortic Valve

Member Since: October 28, 2020

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Page Barnes posted an update
5 years ago (March 2, 2021)
I’m five weeks post op surgery and feeling well. Does anyone have recommendations for gels or creams to use to help heal the scar and at what week or month did you start using it? I’m 27 so I’d like for it to heal as well as it can.
👍 Someone reacted to this
hello, I'm 21 years old, and it is been 12 weeks since my surgery and haven't used yet any gel for my scar, i hope someone could help us.
I used a vitamin E oil for a while. My scar is hardly visible.
I work for a plastic surgeon and we always tell our facelift patients that it does not matter what type of cream/oil you use, it is in fact the stimulation of the nerves under the skin, which you want to do at this stage. Best for that, is good old... Read more.
Your young and your scar will improve even faster than most! stay out of the direct sun on your chest and rub any oil, as they said above on it. give yourself some time:)
I also recommend staying out of the sun completely for a year. Then your scar color will eventually match the rest of your skin and it will be much less visible. But it needs some time. Take care.
Page Barnes posted an update
5 years ago (December 6, 2020)
Has anyone had any experience with the Inspiris Resilia aortic valve or a bicuspid aortic valve repair (using keyhole technique or even just a repair in general)? I’m 27 and needing surgery for my bicuspid aortic valve and am trying to look at other options rather than just the mechanical... Read more.
👍 Someone and Jessica Johnson reacted to this
Page, Edward's Lifesciences is a fantastic company that makes the valve in my aortic position due to my bicuspid valve. Before the virus they would invite 50 patients and caregivers for a all expenses paid tour of their facilities. They call it patients day and it was a great experience... Read more.
I had a bicuspid aortic valve until 2016. This was before the TAVR was available and so the best option was the On-X mechanical valve. Did the Cardiologist suggest that a repair was an option or is that just something that you are preferring?
Hi, sorry to hear you’re going through this at such a young age. Definitely a personal decision and one which is not easy especially for younger patients like us. At 44 I chose the on-x mechanical valve. Repair would have been my first choice but that wasn’t an option. First,... Read more.
Page Barnes posted an update
5 years ago (October 28, 2020)
Hi everyone! I am new to this site but am looking for advice and any information on what to expect after a valve replacement. I’m 27 years old and was born with a bicuspid aortic valve which my cardiologist and surgeon recommended I get replaced or repaired by January. I... Read more.
👍 Sharon Barnes reacted to this
I was born with a bicuspid aortic valve and had my first surgery done in 1960 at 10 years old at Boston Children's Hospital, a procedure they called at the time (this was 1960) a valvotomy. That lasted until I was 34 and the doctor's replaced my valve with a... Read more.
Hi Page, I had surgery 6 weeks ago. Found out last July I needed surgery and that I had a bicuspid aortic valve. I’m 29 years old. The recovery isn’t that bad at all from my experience. The first week after surgery you’ll be in hospital. You’ll just be a... Read more.
Thanks Ken and Stephen! That information was very encouraging to hear. Glad to hear y’all are doing so well after the surgeries!

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