Marie Myers
Glad to hear you have a diagnosis now. It does sound like it has been quite a journey for you.
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Nancy's Posts
Diagnosis: Mitral Regurgitation
Member Since: August 29, 2020
Member Since: August 29, 2020
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Nancy W posted an update
2 years ago (December 1, 2023)
Here is my healing update after bloodwork and visit with the hematologist.
He feels that I have been experiencing valve mediated hemolysis, but at a low enough level that my bone marrow is compensating. That, as well as my newly diagnosed esophagitis may have been responsible for iron deficiency. My... Read more.
Grace Mason
Thank goodness you have a diagnosis now and also have ruled out many other possibilities, Nancy. Thanks for sharing your story. Hopefully with meds and treatment you will be feeling more like yourself again soon. Best wishes for your continued recoveryâ¤ï¸
Susan Lynn
Nancy - I'm glad you have a diagnosis. Wishing you the best. Please keep us posted. ❤️
Daniel Green
Hi Nancy, I found your post very interesting,as I’m experiencing some of the same issues as you. I had my surgery in January of this year. I was in great shape going in as a life long cyclist and competitive until age 64. I’m 73 now and had to have... Read more.
Daniel Green
That was Dan
Nancy W
Dan, yes- so familiar. The anemia has been an off and on issue for me these past 3 years. Extremely frustrating and each time, I really didn’t understand what was going on. I was just slow and needed lots of breaks hiking up hills, etc. or I would nap midday,... Read more.
Daniel Green
Absolutely! I’ll let you know what they think. I also will look for a nutritionist as I’m vegetarian and everything I eat bothers me. I never had this issue prior to surgery. My email is dano750@gmail.com
Nancy W posted an update
2 years ago (November 16, 2023)
Hi all,
After endoscopy and colonoscopy to determine if there is internal bleeding and reason for my anemia, the findings showed no internal bleeding and explanation for anemia, and no cancer but, new incidental findings…. Hiatal hernia and LA grade C ( bad, but not as bad as D) esophagitis... Read more.
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Valerie Allen and Dawn Neal reacted to this
Hi Nancy! Thank you so much for sharing your story. I will be prepared for whatever I have to face after my mitral valve surgery. It sounds like your anemia is not related to the heart? Godspeed for you my friend. I think you are as tough as nails. We... Read more.
Exactly right! The anemia is still a mystery - hopefully bloodwork will provide answers. But my heart is ticking awayâ¤ï¸
Take each day as it unfolds. This forum was and has been so helpful for me. Wishing you all the bestðŸ™
Hope you find some answers soon Nancy.
Hi Nancy, thank you so much for sharing. I’m new to the site and I’m having mitral valve repair surgery in a couple days. Everyone on this site has been so supportive and positive and although I am beyond frightened. I am looking forward to sharing a success story as... Read more.
Nancy W posted an update
2 years ago (September 20, 2023)
I am now in the process of meeting with a gastroenterologist and hematologist to figure out the cause of my anemia since my mitral valve repair in 2020. I recently saw there is research suggesting long term use of baby aspirin may result in anemia. I’m going to speak to... Read more.
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Susan Lynn reacted to this
I have been on a baby aspirin since i was 40, now 81 ugh. No anemia but everyones body is different as it reacts to meds i think. In my case, i had a family history of blood clots so thinning my blood seemed prudent. Now that i take a... Read more.
Nancy - I'll be anxious to hear what your docs have to say. Daily aspirin has become controversial in recent years with many in the medical community questioning the benefits v. the risks. My surgeon required me to stay on it for a year, but did not recommend that I... Read more.
Interesting stuff on baby aspirins. Maybe reason i am still a baby.
My cardiologist took me off it at the last visit.
I met with my cardiologist yesterday and my repeat echo showed no issues with ejection fraction- YAY. Maybe the anemia resulted in poor ejection fraction? He did not want me to discontinue the baby aspirin yet as I’m exploring causes through GI and hematologist. I’m ok with this for now.... Read more.
Nancy, great to hear that your echo was good! You are doing well in teaching your doctors to see you as a whole person. That's very important.
Yes! Glad your echo was good and totally agree with Rose. Specialists tend to be very micro focused, but humans aren't like laboratories - everything can't be held constant while they evaluate a patient. It's critical to look at the whole person. ❤️
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