Marilyn's Profile

Diagnosis: Aortic Stenosis, Bicuspid Aortic Valve

Member Since: April 9, 2016

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About Me

About four or five years ago I was first told I had a heart murmur. The Dr. seemed to think it was not a big deal. Then last year I had a small stroke. The ER diagnosed it as Bell's Palsey and sent me home with antiviral medication. After following up with other doctors to find the cause of the stroke I had tests including TEE and angiograms. Then I found out about my bicuspid valve and severe stenosis. I guess I was lucky in a way I had the stroke so that I found out what was going on with my heart. I had been feeling out of breath when walking for some time. I was also told I had slight asthma so I figured it could be from that. My Dr. said my echoes showed now it's time for surgery. I'm terrified to say the least. I am reading as much as I can and ordered Adam's book. Also having a hard time sleeping at night. The best thing was finding this site and seeing all the positive outcomes. I'm reading it every day. It gives me hope that I can get through this! I also can't wait to get to the other side. Thank you all so much for sharing your stories!
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    I am from: Youngstown, Ohio, United States
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    My surgery date was: April 20, 2016
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    I was diagnosed with: Aortic Stenosis, Bicuspid Aortic Valve
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    My surgery was: Aortic Valve Replacement
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    My surgeon is: Dr. Douglas Johnston
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    My hospital is: Cleveland Clinic

Upcoming Surgeries

Jane Schappell
Aortic Stenosis
May 13, 2026
Margaret Devenney
Aortic Stenosis
May 14, 2026
Chris Freyer
Mitral Regurgitation
May 15, 2026

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