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Diagnosis: Aortic Stenosis, Bicuspid Aortic Valve

Member Since: September 10, 2022

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Thomas Tomlinson added photos to a journal post

3 years ago (October 6, 2022)

🥰 Cheryl Mann reacted to this

Marie Myers

Man cave or tree house?

Thomas Tomlinson

Drive through redwood. My daughter took me on vacation about a month ago to Northern California so I could cross it off my bucket list. She's a pretty good kid!

Marie Myers

You did a great job raising her!

Ana Brusso

I agree with Marie. Itâ€™s nice to have good kids. This is a great picture, looking good. Hope you are able to get the Ross procedure. Keep us posted and God bless you

Deena Z

Nice trip! Cool thoughtful daughter too. You're young and will heal well. Hopeful that you will be a candidate for the ROSS. A surgeon that does a higher volume of these surgeries is more likely to say yes, so please take that into consideration, even if it means travelling a... Read more.

Thomas Tomlinson

I looked into going to the mayo clinic, but my insurance said that would be out of network.

Deena Z

Thomas, can you go out of state with your insurance? I know it seems far away but we have heart warriors that went to Mt Sinai in NYC, Wash State and Southern CA for their ROSS surgeries that are nationally ranked. Just wanting you to get the best surgery and... Read more.

Thomas Tomlinson

I contacted my insurance company and they said that I would not be covered out of network. Kind of a bummer, but UW Madison where I will be going has a Ross procedure program, I just don't know yet how experienced the doctor is that I will be seeing.

Thomas Tomlinson

OK, so I talked to my Ross surgeon and he thinks that I am a good candidate for the procedure. He said that he has done 49 or 50 procedures in the last 6-7 years at UW Madison, and he is the chief Ross surgeon there. He also said that... Read more.

Deena Z

Thomas, for sure, I would send a note to some of the ROSS warriors on this website. Timothy Andre, on this site, had his ROSS procedure at Mt. Sinai in NYC this year, where a lot of ROSS procedures are performed and el-H. is a ROSS surgeon. Timothy is super... Read more.

Thomas Tomlinson

Well, it's all set, December 13th is the big day. Having the Ross procedure done. Wish me luck

Ana Brusso

Where and with who? We will be here rooting for you Thomas. ðŸ‘

Thomas Tomlinson

The surgery will be performed by Petros Anagnostopoulos at UW Madison hospital in Madison, WI. I'm not to freaked out yet, but the closer it gets...

Ana Brusso

You will be just fine. Try to keep yourself busy with things you like to do until surgery date. We will be here to welcome you to recovery. God bless you heart warrior â¤ï¸ðŸ™

Thomas Tomlinson

Thank you, I appreciate the support.