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Diagnosis: Aortic Regurgitation, Bicuspid Aortic Valve, Aortic Aneurysm

Member Since: November 2, 2023

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C W got a guestbook from Sue Maize

1 year ago (May 23, 2024)

Hey CW, we havenâ€™t heard from you in a while. I hope that means youâ€™re off travelling and living life to the full! ðŸ¥°ðŸ™ŒðŸ»

C W got a guestbook from J Alexander Lassally

2 years ago (January 30, 2024)

Thou shalt not click ! (smile).... Hope it does not continue. I am mindful to watch for this too.

🥰 C W reacted to this

C W

Haha! For me itâ€™s just the shoulder rollsâ€¦pushing my shoulders back & expanding the chest is not such a good idea yet!! yikes!!!

C W got a guestbook from Max Jam

2 years ago (January 10, 2024)

Hello C, i have bav regurgitation as well. Most of bav issues here seem to be stenotic. How old are you? And how fast was your regurgitation progression. Im 28 diagnosed with mild to moderate regurgitation and very worried :(. im glad you are doing well, with your recovery. regards,... Read more.

C W

Hi, Max. I'm 56. I did not have stenosisâ€¦ my valve was in good enough shape to be repaired. The problem with my valve was regurgitation, which was moderate, or moderate / severe, depending on which test result I look at. That alone might not have qualified me for surgery.... Read more.

Max Jam

Thank you so much! ignorance is bliss sometimes. I wish i found out later about this. Blessings and congrats!

Max Jam

Hii C, Who did your repair?

C W

Hi Max. My surgeon was Glenn Egrie, California Pacific Medical Foundation Van Ness in San Francisco. He is not in the surgeon index here, though I suppose I could add him. I was referred to him by my cardiologist. They are in the same health care network, work together regularly,... Read more.

Max Jam

Nice, thank you !

Max Jam

Hello C, do you know if tavr is possible after bicuspid repair? Or it needs to be surgery if it fails again?

C W

Sorry, Max â€”- I do not know the answer to that. I know that my surgeonâ€™s hope for me is that I could have TAVR if / when that becomes necessary. Check back with me in 20-30 years (at minimum, I hope!) !!!!

Max Jam

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Garrett Payment

Do any of you have a condition called marfan syndrome? It's a genetic mutation that leaves you predisposed to heart defects, valve problems and aortic dissections, it is hereditary. My grandmother had it, died from complications when my dad was 10, my dad has it is well multiple surgeries. My... Read more.