Anastasia's Guestbook

Member Since: June 11, 2025

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Anastasia B got a guestbook from Henry Ticknor
6 months ago (October 16, 2025)
I also had a leaky tricuspid valve due to an ICD lead. In May I got the the new Tric bicaval tricuspid valve repair system that avoids messing with the valve itself and puts a valve/sent in both the superior and inferior vena cava preventing blood from flowing backwards. It’s... Read more.
🥰 Anastasia B reacted to this
Thank you for sharing your story! Unfortunately, this option not recommend to me due to relatively early age. The valve repair is the best option based on all discussions I had with the doctors.
Anastasia B got a guestbook from Doris Wunsch
6 months ago (October 16, 2025)
Hello, Anastasia I saw you have a tricuspid valve issue, with regurgitation, and wanted to connect. I have the same as a result of complication when I was having pacemaker lead replaced. The lead tore my valve and now I’m in the process of testing ( second set) to find... Read more.
🥰 Anastasia B reacted to this
Doris, boy do I understand your feelings of being kind of alone with tricuspid valve issues. You are in a good place though, as even though there are only a few of us, the support, love, kindness and information is so helpful. Tricuspid is coming along and they are making... Read more.
Thank you for reaching out Doris! I have contradicting opinions: some doctors recommend to still wait as I don’t have symptoms and I have this leaking valve since childhood as a result of CHD. They think I can live in current state for many more years as my body compensating... Read more.
I had a mini right thorecotomy to repair my tricuspid with a Medtronic contour ring about 4 weeks ago at Northwestern Bluhm Cardiovascular Institute in Chicago. I went from severe/ massive regurgitation to trivial after surgery. From all the research I did before surgery , I found it's better to... Read more.
This is embarrassing, I am still learning my way around the ‘webpage’ 140 days later. I was under the impression I would get an email telling me if anyone had made contact but it looks like that is not the case. Thanks for sharing your experiences. I can relate to... Read more.
Well, I'm updating quite a while later here and many complications and hospital stays later. This has been just insane what I've been going through , you'd need to read some of my other convos as I do not think I can go through it all here again. At this... Read more.
So sorry to hear about all these complications, Kimberly! I hope it will be resolved as soon as possible 🙏 I agree tricuspid valve is a tricky case and there is not much data on it vs other valves :( I’m in touch with German clinic and go there every... Read more.
I'm sure you will make the best decision for yourself when the time comes. Trust your gut feeling, you'll know when you're ready and you've chosen the right surgeon. You know; I'm half Irish (mothers side) and half German (fathers side). Always wanted to travel to Europe , just don't... Read more.
Anastasia B got a guestbook from Kimberly Eisenhut
11 months ago (June 12, 2025)
Anastaisia, I also have severe 4+ TR, but I have been having symptoms for a while now. I am looking at transcatheter and possible minimally invasive with Northwestern in Chicago. I have also been through 8 years of monitoring and find it very difficult to find much information on outcomes... Read more.
Thank you for reply! All the best with your procedure, I hope transcatheter will work for you, I heard great things about this new option .
I am not sure I can get it yet, but have to wait until my patch testing is complete. A lot of "ifs" right now, which is hard to handle most days. How are you doing?
I hope you will get clarity soon on your next steps! I’m planning another trip to Germany to another clinic. Basically looking for the most experienced surgeon in tricuspid valves repair.

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