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Diagnosis: Mitral Regurgitation, Mitral Stenosis

Member Since: June 11, 2024

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Tracy Mcpherson posted an update

1 year ago (June 11, 2024)

Edit: Just to clarify, the TMVIV is the Transcatheter Mitral Valve in Valve procedure. They go in and place new Valve (through cath) over the existing valve. They do not remove the old valve. Hello everyone! I have a Medtronic Porcine mitral valve that is leaking severely and has mild... Read more.

J Alexander Lassally

I need to read more about it, but I thought any transcatheter Mitral replacement approach was new to the scene, so there is not a lot of data on it. Since you are 50, as am I, the question also mounts - what about another surgery down the road at... Read more.

Yumiko Ishida

I am not familiar with TMIVI. Iâ€™m assuming that is a transcatheter procedure? If that is the case, I think J Alexander is right in that it is relatively new and there is not a lot of data. Has anybody mentioned thoractomy as an option? Itâ€™s frequently referred to as... Read more.

Robert Miller

I am not qualified to give any advice. But what are the other options not going with a TMVIV? Not sure how long it will last but it's less invasive. I had a couple of surgeries and scaring was mentioned as an issue. So I am not sure you want... Read more.

Valerie Allen

Iâ€™m not familiar with it either, as mine was aortic full sternotomy. But I would ask for how many the surgeon has performed, how often and what is his success rate. Also the possible complications after surgery and how long the valve is expected to last. That said, I would... Read more.

Yumiko Ishida

Valve in valve! I shouldâ€™ve figured that one out. Itâ€™s in my long term plan. As a lay person, I found data on TMVR to be scarce, and info on mitral VIV even scarcer. Nothing on mitral valve-in-valve-in-valve. So you probably do need to seek out a specialist. It might... Read more.

Tracy Mcpherson

Yeah, I haven't been able to find much of any information, research, or studies about it. I don't want to put something in that will fall out down the road.

Tracy Mcpherson

My only other options are minimally invasive through the side valve replacement, but not recommended due to scar tissue from two previous open heart surgeries would make it too risky and full open heart not recommended either, as he said the sternum would not heal properly if cut open a... Read more.

Robert Miller

Again, I am not really qualified talking about this but why did you have two OHS in the first place? Did something go wrong with the first one (it did for me)? Did you have a repair and that didn't work out? Then had a replacement? If you have another... Read more.

Tracy Mcpherson

I had my first OHS at 18 months due to ASD repair. Then in 2009 I had my leaking mitral valve replaced with the porcine valve that I have now.