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Nm's Posts

Diagnosis: Aortic Stenosis

Member Since: October 1, 2017

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Nm Peacesine posted an update

7 years ago (August 21, 2018)

Sometimes your path in life veers off into unexpected territory. After a year of tests and consultations, I've been told that neither open heart surgery nor a TAVI are recommended due to my weight. The risk is too great. Fortunately my aortic stenosis, although severe, is still at a stage... Read more.

Marie Picun

With all due respect. Lose the weight so you can have surgery. Your family needs you. This is why we have our surgery, to live, to be with our family.

Susan Lynn

Nancy - I'm sorry to read this news and encourage you to do whatever you can to live a long life. I lost my mother to an incurable disease and miss her every day. Be there for your daughter - there's no substitute for a mother. There's so much of... Read more.

Janet Skinner

Hi Nancy. Did you ask the doctors if the surgical risk would be lower if you lost weight? I agree with Marie and Susan: do what you can to mitigate your risks so you can be around to enjoy your family and vice versa. Life IS a gift and we... Read more.

Anna Jones

I'm also wondering if you would get better medical care if you came to the USA for treatment.

Nm Peacesine posted an update

7 years ago (August 3, 2018)

Last January when I talked to the cardiologist, I pressed to have a TAVI rather than open heart surgery (see my journal). He said that he'd bring it up with the cardiac round table in a few weeks. Then there were months of tests, cardiologist visits, appointments with two different... Read more.

Nm Peacesine posted an update

7 years ago (July 15, 2018)

I have aortic stenosis and the surgeon recommended TAVR while the cardiologist is pushing for a mechanical valve and open heart surgery. It was explained to me by the TAVR coordinator that the TAVR was considered a "procedure" along the lines of, but not nearly as simple as, an angiogram... Read more.

Rose Madura

I can answer with what I know from my Aunt's TAVR procedure a couple of years ago. Here in the United States, you are a candidate if you are a high risk for open heart surgery due to age or other medical factors. My aunt was 75, had breast cancer... Read more.

Minimally Invasive Heart Valve Replacement Option | New Heart Valve HCP

https://newheartvalve.com/hcp/tavr-overview/

Transcatheter Aortic Valve Replacement or Open Heart Surgery - Learn the clinical difference between both options and what may be right for your patients.

Diane Maher

Hi. I am also from Victoria...Dr. Perchinsky is my surgeon and Dr. Robinson my cardiologist. All the surgeons in the Heart Institute are considered top rated, including yours. My surgeon does not recommend TAVR except for medium to high risk patients for OHS. Have you asked your surgeon for more... Read more.

Judy S

Wow Nancyâ€”just read your story. Check out mine and you can see what I went through on the topic of TAVR. In the US, it is most available to patients who are high or intermediate-risk for OHS. They are now moving toward low surgical risk patients. Ultimately it matters how... Read more.

Rita Savelis

There is usually a good reason that a surgeon will recommend TAVR (age, high risk for surgery, etc) but at this point we don't know how long TAVR valves will last or what having multiple TAVR procedures will be like. Each procedure has its pluses and its risks so you'll... Read more.

Diane Maher

You might find some of the info informative re TAVR procedure, Dr. John Webb, St. Paulâ€™s Hospital Vancouver. I also noticed that he filmed a segment of the procedure on you-tube. Really unfortunate about all of the delays that have occurred...certainly doesnâ€™t help the anxiety level.