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Diagnosis: Aortic Stenosis, Bicuspid Aortic Valve

Member Since: October 27, 2016

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Kevin Ryan posted an update

8 years ago (May 21, 2017)

Hi, everyone: Eight weeks post Ross procedure and now in atypical atrial flutter. Was successfully cardioverted two weeks ago...then after my second day of cardio rehab...returned to this arrhythmia. Now facing a second ablation procedure (original one was successful seven years ago for atrial fib.) Feeling discouraged.

Cathy Zuber

Hi, know what you mean,, just got home from the ER..cardioverted on Thursday...after 2 months in AFIB after mitral valve replacement...back in AFIB!! Higher than befor!! This is in the low 100's. See cardiologist on Tuesday!!

Jeanette Davidson

I completely understand your frustration. Such a bummer! You are entitled to feel how you feel AND you will get through this and move on. Try to just ride the waves right now and hang in there . You will be in my thoughts and prayers!ðŸ’“

Melissa Houser

Prayers for you!

Kevin Ryan posted an update

9 years ago (January 27, 2017)

Hey, there. Anyone have personal experience or know of someone who has had the Ross procedure for aortic stenosis? How is it holding up? My main concern is the complexity of taking a one valve problem and creating a two valve issue...and the fear of re-operation. Thanks!

Phyllis Petersen

Adam Pick had it years ago, but so have a few others on here.

Kevin Ryan

Thanks, Phyllis. Yes, I've actually talked with a few...very nice people and very positive re Ross. I was going to Cleveland Clinic/Dr. Guillinov...now to Mt. Sinai in New York with Dr. Stelzer. Went round and round...still am. Paralysis by analysis as they say.

Kevin Ryan posted an update

9 years ago (January 4, 2017)

Anyone out there have a Ross procedure done to replace bicuspid aortic valve? Am considering it...would love to hear your experience. Thanks.

Cathleen Weed

I had a Ross Procedure in 1994 at age 22 for a bicuspid aortic valve and all was perfect until I had an aneurysm on my ascending aorta that required another surgery in 2005 at age 33. The aortic valve (my own pulmonary valve in that position) was doing awesome... Read more.

Kevin Ryan

Interesting, Cathleen! TAVR....non-invasive valve replacement....wow!! I had read where it was being done in Europe for moderate risk patients. Very cool the US is catching on! All the best! On a side note: I see that you speak caninese. Rescues are the best...north, south, east, and west! :-)