Joan's Profile

I was born with a heart murmur which was diagnosed as MVP when I was a teenager. I have been on a beta blocker to control frequent arrhythmias since my first pregnancy at age 22. More recently, I was told I have "myxomatous degeneration of the mitral valve" related to a connective tissue disorder. I have been followed by my cardiologist every 6 months for many years, knowing that someday I would need valve surgery. I am still a bit shocked to discover that day has arrived at the age of 56! A recent TEE showed my mitral valve is leaking 90 ml ( or 3 ounces with every heartbeat) back into my left atrium. My heart is enlarged, and I tire easily. On top of this, I just found out my mitral annulus is very calcified, so my chance of repair (vs replacement) is 50/50. That is a big disappointment and a concern. My surgeon specializes in MV surgery and has been performing repairs/ replacements for over 30 years, so I know I am in good hands. But here I am, searching for ways to prepare to face this rather frightening surgery that will hopefully restore my energy and health.