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Diagnosis: Bicuspid Aortic Valve, Aortic Aneurysm

Member Since: July 20, 2021

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Jay Heagerty got a guestbook from Mike Wynn

2 years ago (March 28, 2024)

Jay: I enjoyed reading your story. Like you, I have had my condition (aortic stenosis - possibly bicuspid) monitored for 5-6 years now. Although I have some things that happen that make me wonder if I am having symptoms, I can't really identify anything that I know for sure are... Read more.

Jay Heagerty

Nice speaking with you Mike. Hope everything works out well for you. Keep me posted. Again, my surgeon was Dr Kevin Landolfo at Mayo Clinic in Jacksonville.

Jay Heagerty got a guestbook from Mike Wynn

3 years ago (March 2, 2023)

Jay, thanks for sharing your story. I too have had a bicuspid AV for some time and so far asymptomatic. Get an echo each year to monitor status. Have thus far always been mild to moderate range. I am in the Central FL area and am not real confident that... Read more.

Jay Heagerty

Mike, I researched doctors who had significant experience with the aortic aneurysm aspect of my surgery. The top two that I found were at Cleveland Clinic and Mayo Clinic in Florida. I chose Mayo for two reasons: one, Dr Kevin Landolfo was well credentialed with several hundred surgeries like mine.... Read more.

Mike Wynn

Thanks Jay. One thing that I am struggling with a bit is when to make a move to the doctor I would want to do a surgery. I have read on this website that there is a move toward doing surgery prior to the existence of symptoms (at least before... Read more.

Rose Madura

Mike, if I may jump in here and say that, at least in my case, I worked with my cardiologist who ordered the echos. When he told me it was time based on the echo, I got a 2nd opinion and then switched to the cardiologist who gave me the... Read more.

Jay Heagerty

I wanted a surgeon's opinion as to when I should do surgery. One of the first things my surgeon said to me was he would not do the surgery until the risk of not doing the surgery exceeded the risk of the surgery. It also gives you time to develop... Read more.

Mike Wynn

Thanks Jay and Rose - this input is very helpful. One more if you don't mind. Has it been your experience that insurance covers second (or even more) opinions through this process?

Jay Heagerty

Mike Wynn, I had no issues with my insurance as Mayo was monitoring my condition for over two and a half years prior to my surgery.